Human Rights in Ireland


In memoriam: Mary Raftery and John McCarthy

Eilionoir Flynn

Ireland lost two great citizens yesterday: Mary Raftery and John McCarthy. Both fought bravely to expose injustice in Irish society, through journalism and through activism. Their work has given voice to many who have long been ignored by society – people who were institutionalised, and whose freedom and dignity were denied by the treatment they received.

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Whoop it up for Liberty! Texts used in script now available

Eilionoir Flynn

Following tonight’s successful performance of Whoop it up for Liberty! in Druid Theatre, Galway we would like to share the texts from which extracts were chosen and included in the performance. This link will bring you to a google document which contains the original, full extracts, which have been modified for use in tonight’s performance. It also links the documents to their original source, if available online, and, where relevant, contains links to the images which we feel connect with the pieces chosen for the performance. Thanks again to everyone for supporting this project – we hope we have made a contribution to the open democratic arts, and to exploring further some aspects of Ireland’s human rights history. The performance has been recorded, and we hope to share some clips from the recording with you in the near future.

Potential Genetic Discrimination in the English Premier League

GuestPost

We are delighted to welcome this guest post from Aisling de Paor, a Ph.D candidate in the Centre for Disability Law and Policy at NUI Galway, and Irish Research Council for the Humanities and Social Sciences (IRCHSS) scholar. Aisling is a graduate of NUI Galway (BCL) and University College Cork (LL.M).  Aisling qualified as a solicitor and specialized primarily in employment law.

It has recently been reported in the media that an unnamed English Premier League soccer club has been genetically testing its players to determine who is at a higher risk of injury, and to determine which players are likely to perform better.  Genetic technology is rapidly advancing and scientists have discovered over one hundred genetic mutations linked to serious soccer related injuries such as ruptured tendons.  These discoveries are also linked to genes indicating improved performance, such as better aerobic respiration giving players more stamina on the pitch.

The benefits to soccer clubs of engaging in these genetic tests are significant.  Genetic testing could enable clubs to filter out potentially injury prone players before investing large amounts of capital into their development. Competition between soccer clubs is becoming increasingly apparent.  Already, there have been advances in fatigue reduction and hydration management that have enabled some players to perform at greater capacities for longer periods of time.  In addition, there is a strong argument on the part of soccer clubs that genetic testing would enable them to prevent players from incurring potentially career threatening injuries.  Arguably, genetic testing and knowledge of a player’s genetic information may also lead to better Read Full Post »

Whoop it up for Liberty! Tickets now available

Eilionoir Flynn

Many thanks to everyone who supported our funding efforts for Whoop it up for Liberty! Thanks to your support, we reached our funding target and are well on our way to producing this exciting performance in Druid Theatre, Galway on 10 December. Rehearsals are gearing up, and we have an amazing mix of people with personal experience of rights-violations, professional actors, and community activists involved in the performance.

We released many of the tickets for this event to those who donated to the project on Fund It, however, there are still a limited number of tickets available to anyone who would like to attend the performance in Galway on 10 December. The venue is fully accessible, and there will be a hearing loop provided at the performance. We are currently looking into providing other accessibility features, and would like for anyone who is interested in attending to let us know what their requirements are, and we will do our best to ensure that the performance is inclusive and accessible to all, within the constraints of our budget.

To reserve your ticket for the performance, contact Liam Thornton, and if you have specific accessibility requirements, you can contact me. We will be recording the performance on the night and will hope to make the recording available online afterwards – and will also publish the script of the performance on the blog after the performance.

Amnesty International CDLP Seminar on Legal Capacity

Charles O'Mahony

The Centre for Disability Law and Policy (NUI Galway) and Amnesty International (Ireland) held a seminar today on getting legal capacity law right.  The seminar can be viewed here.  The seminar heard from Oliver Lewis from MDAC who spoke about the CRPD in international Best Practice on legal capacity law.  Christine Gordon who spoke about the lessons from British Columbia on supported decision-making.  Professor Gerard Quinn spoke about the challenges in realising supported decision-making.  The seminar was chaired by Colm O’Gorman the Executive Director, Amnesty International (Ireland) and was addressed by Kathleen Lynch the Minister for Disability, Equality, Mental Health and Older People.  One of the really interesting aspects of the seminar was the contribution from the “experts through experience” who spoke of their perspectives on legal capacity when decision-making is called into question.  Mary Farrell spoke about her experience in terms of her son who was made a Ward of Court following a High Court Award of damages for an acquired brain injury.  Paul Alford spoke about his experience of moving from an institutional setting to living independently in the community and making his own decisions about how he lived his life.  Bill Lloyd an advocate for older persons spoke about the deficiencies of Irish law in respecting the decision-making of one of his clients who was diagnosed with dementia.  Jim Walsh shared his experience and perspectives on decision-making and persons seen as having a mental health problem.

Report on the Proceedings from the Conference on Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response

Charles O'Mahony

We are delighted to welcome this guest post from Aisling de Paor, a Ph.D candidate in the Centre for Disability Law and Policy at NUI Galway, and Irish Research Council for the Humanities and Social Sciences (IRCHSS) scholar. Aisling is a graduate of NUI Galway (BCL) and University College Cork (LL.M).  Aisling qualified as a solicitor and specialized primarily in employment law.

On Saturday 19th November 2011, the Centre for Disability Law and Policy (in conjunction with the Burton Blatt Institute, Syracuse University, USA) hosted a conference entitled ‘Genetic Discrimination – Transatlantic Perspectives on the Case for a European Level Legal Response’ at National University of Ireland Galway.  This international conference, which was chaired by Justice John Mac Menamin of the High Court, was the first of its kind in Europe and brought together a diverse range of leading experts in the area, with the objective of exploring the case for a European level response to protect the privacy of genetic information and to prevent genetic discrimination. The conference highlighted the interdisciplinary nature of this area and focused on the interaction between genetic science, technology, ethics and the law, and in particular, how best to regulate this complex area. Read Full Post »

Council of Europe Recommendation on the Political Participation of Persons with Disabilities

Charles O'Mahony

The Committee of Ministers of the Council of Europe last week adopted a Recommendation that seeks to increase the participation of persons with disabilities in political and public life at all levels − local, regional, national and international.  The Recommendation is available here.  Between 80 – 100 million persons with disabilities live in the 47 Member States of the Council of Europe.  The Council of Europe noted that persons with disabilities often do not take part in the decision-making process as they face legal, physical, and societal barriers to participating. Through this Recommendation the Committee of Ministers seek to challenge this exclusion. The Recommendation aims to remove barriers and create conditions for active citizenship, without discrimination, for all and in all life settings. The Recommendation stresses that all persons with disabilities are entitled to express their views and should not be deprived of their right to vote or stand for election on the basis of disability.  This is a very progressive statement from the Committee of Ministers and goes some way towards countering the repressive position of the European Commission for Democracy Through Law (the Venice Commission) regarding the eligibility of persons with intellectual disability to stand for election and vote.   The Venice Commission in its“Interpretative Declaration to the Code of Good Practice In Electoral Matters on the Participation of People with Disabilities in Elections” stated:

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Getting it Right: Capacity Legislation and the Convention on the Rights of People with Disabilities

Charles O'Mahony

Amnesty International and the Centre for Disability Law & Policy (NUI Galway) will run a seminar entitled “Getting it Right: Capacity Legislation and the Convention on the Rights of People with Disabilities” on 30 November 2011 from 9am – 1pm at the Alexander Hotel, Fenian Street, Dublin 2.  This seminar will explore how Irish legislation can reflect the changes Article 12 of the Convention on the Rights of Persons with Disabilities (CRPD).  Article 12 of the CRPD requires a fundamental change in thinking about legal capacity and repeal of laws that restricts or denies legal capacity.  Person sharing their personal experiences of having their legal capacity called into question will address the conference.  The seminar will also be addressed by leading international legal experts Christine Gordon (speaking about the British Columbia model) and Oliver Lewis (MDAC). This seminar is timely as the Government moves towards the publication of a bill to replace the outdated Ward of Court System.  For more information see here.

Conference on Disability & Genetic Discrimination

Charles O'Mahony

This Saturday 19 November the Centre for Disability Law & Policy will co-host a one-day conference with the Burton Blatt Institute entitled “Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response”.  It will take place  in Aras Moyola (Ground Floor), North Campus, National University of Ireland Galway commencing at 9am.  The leading experts in the field will speak at the conference.  See the detailed conference programme here and an Irish Times piece here.  This one day international conference is the first of its kind in Europe and will be significant in sparking a debate in Europe about future law and policy in this area.  It is planned to publish the proceedings from the conference. The purpose of this conference is to examine the case for a European level legal and policy response to protect the privacy of genetic information and to prevent genetic discrimination, particularly in the employment and insurance contexts.  The science of genetic testing and related technology is in the process of advancing. Among other things, genetic testing technology may well offer the prospect of being able to detect the onset of future disabilities. The technology is becoming more prevalent and is being used increasingly in both the employment context and the insurance context.  The conference is aimed at legal practitioners and medical practitioners, academics and researchers, NGOs and those involved in disability issues, bioethics and practice. It is also aimed at those interested in medical testing generally as well as genetic testing specifically. There will be Continuing Professional Development (CPD) points available to those who are eligible and a Certificate of Attendance will be provided after the Conference.  For further information please contact Ms. Aisling de Paor at: aisling.depaor@nuigalway.ie or telephone +353 91 494017.

Whoop it up for Liberty!

Eilionoir Flynn

 As announced in August, the Human Rights in Ireland blog will host a performance on 10 December at 6pm in Druid Theatre, Galway to celebrate Human Rights Day. The event is called 'Whoop it up for Liberty!' - an ironic quote from Connolly's Reconquest of Ireland. As part of the performance, actors, local people and community activists will read aloud from texts commemorating key moments in Irish history which relate to the theme of human rights. The performance will feature first person narratives which highlight the experiences of workers, women, people with disabilities, travellers, language rights activists, asylum seekers, children, prisoners and many others as they relate to human rights in Ireland – from historical perspectives right through to the present day. Thomas Conway, literary manager of Druid Theatre, will direct the performance, which will be followed by a question and answer session where the texts and themes will be further discussed.
 

Since this is a not-for-profit event, we are seeking support to cover our production costs. The director and actors involved are generously volunteering their time, and in order to do justice to the inspiring texts used to create the script, we would like to make this as professional an event as possible. The event has been listed as a creative venture on Fund It to secure crowd source funding for the performance. This link will take you to the Fund It page for the event where you can watch a video clip of some of the actors involved reading from a draft script - and we would appreciate if readers of the blog could repost the link via social media. Donations received will go towards the cost of hiring the venue and rehearsal space, lighting and sound, recording the performance, providing catering for the cast and crew after the performance, producing programme notes for the event, and making the performance accessible to all.

 

This will be the first time an event of this kind has been performed in Ireland, using first-person narratives to explore historical and present-day experiences of human rights across a broad range of issues: identity, belonging, democracy, politics, solidarity, and exclusion. We hope that people will contribute what they can to make the event a success – and we hope to see as many of you as possible on 10th December in Galway!

 

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